What happens if you contract COVID-19 but never fully recover? This is the reality for Long COVID patients, who face a condition that lacks a standard diagnostic test, treatment, and scientific consensus. Long COVID patients also face stigma when friends, family and medical providers underestimate the severity of the condition. On top of that, these patients often face challenges accessing disability benefits. In this episode, explore what we know about Long COVID — and other elements that remain a mystery. The Vitals team sat down with Ed Yong, Pulitzer Prize winning journalist and author that has covered all aspects of the COVID-19 pandemic including reporting on the existence of Long COVID. We also learned first hand, from Margot Cage and Charlie McCone, what the reality of living with Long COVID looks and feels like today.
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Find our experts and hosts:
:: Sheena William, RN ::
Twitter: @Keepingitkinky1
Instagram: @keepingitkinky
:: Alok Patel, MD ::
Website: http://alokpatelmd.com/
Twitter: @AlokPatelMD
Instagram: @alokpatelmd
:: Ed Yong ::
Ed is a journalist who covers COVID-19 and Long COVID. Yong won a Pulitzer Prize for his coverage of the COVID-19 pandemic. He is also a New York Times best selling author and currently reports for The Atlantic.
https://edyong.me/
:: Charlie McCone ::
Charlie is a Long COVID patient and advocate.
https://www.theminiadhdcoach.com/
Twitter: @loscharlos
:: Dr. Margot Gage ::
Dr. Gage is a social epidemiologist, assistant professor at Lamar University, and a Long COVID patient.
https://www.margotwitvliet.com/
Want to Read More?
Recent research, common symptoms of Long COVID
https://www.ama-assn.org/delivering-care/public-health/long-covid-new-research-common-symptoms-long-term-effects-and
CDC and NIH on Long COVID:
https://www.cdc.gov/nchs/covid19/pulse/long-covid.htm
https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html
https://www.nih.gov/news-events/news-releases/large-study-provides-scientists-deeper-insight-into-long-covid-symptoms
https://covid19.nih.gov/covid-19-topics/long-covid
https://www.niaid.nih.gov/clinical-trials/covid-19-recon-19-study
Ed Yong’s reporting on Long COVID
https://www.theatlantic.com/health/archive/2023/04/long-covid-symptoms-invisible-disability-chronic-illness/673773/
Does vaccination protect against Long COVID?
https://www.nature.com/articles/s41467-023-38388-7
https://www.bmj.com/content/380/bmj.p491
https://www.health.harvard.edu/diseases-and-conditions/vaccination-may-protect-against-long-covid
More on Long COVID and stigma
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0277317
Brookings Institute report on Long COVID and unemployment
https://www.brookings.edu/articles/new-data-shows-long-covid-is-keeping-as-many-as-4-million-people-out-of-work/
More on navigating disability benefits with Long COVID
https://kffhealthnews.org/news/article/long-covid-barriers-government-disability-benefits/
Long COVID support groups
https://www.nbcnews.com/news/nbcblk/black-covid-long-haulers-felt-invisible-health-care-system-formed-supp-rcna44468
This episode of Vitals is licensed exclusively to YouTube.
00:00 Intro
01:39 What is Long COVID
02:46 Ed Yong, reality of Long COVID today
04:14 Margot Gage talks about her Long COVID diagnosis
04:59 Charlie McCone talks about his Long COVID challenges
05:51 What it's like living with Long COVID
07:53 Similar to other medical gaslighting examples
09:04 Who is most vulnerable
11:40 Recovery is possible